Is there anyone here that has a child with congenital heart defect? I would love to meet more parents in this area. I started a group on here last year called "congenital heart defects" and would love to see it grow. They affect 1 out of 100 so I know they have to out there. My son, Caleb was born with Pulmonary Atresia with Intact Ventricular Septum, and Tricuspid Stenosis; in short, half of a heart. We spent 4 months at Shands and are waiting for his next open heart surgery.